Practical tips for ethical data sharing [Recurs electrònic] / Michelle N. Meyer
Description: 14 p. : digital, fitxer PDF (195,84 Kb) In: Advances in methods and practices in psychological science Vol. 1 n. 1 (2018), p. 131-144Summary: This Tutorial provides practical dos and don'ts for sharing research data in ways that are effective, ethical, and compliant with the federal Common Rule. I first consider best practices for prospectively incorporating data-sharing plans into research, discussing what to say-and what not to say-in consent forms and institutional review board applications, tools for data de-identification and how to think about the risks of re-identification, and what to consider when selecting a data repository. Turning to data that have already been collected, I discuss the ethical and regulatory issues raised by sharing data when the consent form either was silent about data sharing or explicitly promised participants that the data would not be shared. Finally, I discuss ethical issues in sharing "public" data. (Font: Autor)| Item type | Current library | Collection | Call number | URL | Status | Date due | Barcode | |
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e-Article
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Centre d' Informació i Documentació del CERC Repositori digital | General | E180046 | Accés al document | Available (Accés restringit) | E180046 |
Abstract -- Keywords -- Preparing to Share Data Effectively and Responsibly: Don't promise to destroy your data ; Don't promise not to share data ; Don't promise that research analyses of the collected data will be limited to certain topics ; Do get consent to retain and share data ; Do incorporate data-retention and -sharing clauses into IRB templates ; Do be thoughtful when considering risks of re-identification ; Do consider working with a data repository ; Do be thoughtful when selecting a data repository -- Sharing Data That Were Previously Collected Without Explicit Consent to Share -- Ethical considerations -- Regulatory considerations -- Sharing "Public" Data -- Conclusion -- References
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